Increasing Public Awareness

Collaborate how best to support public awareness campaigns and develop leadership strategies to engage all sectors of the community in addressing challenges associated with dementia.

Recent Posts

"Act on Alzheimer's Disease" website features many practical resources geared towards a variety of audiences including healthcare practitioners, local communities, caregivers, and individuals living with some form of dementia. I found their curriculum modules very informative and it built upon my pre-existing knowledge of Alzheimer’s Disease (AD) and other forms of dementia.

HBO’s Alzheimer’s Project features a series of films each highlighting issues related to this subject matter such as the personal accounts of patients, their family members, and caregivers. Another film, Momentum in Science, discusses groundbreaking scientific discoveries being examined by top researchers in this subject area. I viewed the latter film because I found it interesting to learn more about the complexities of this disease trajectory, research aims, and innovations. A few things I learned . . .

As part of the Duke University Health Equity Academy, we have the opportunity to host distinguished researchers who are focusing on reducing health disparities.

April's lunch and learn presentation was focused on leveraging knowledge of socio-economic determinants of health to create more inclusive healthcare delivery and training environments.

Click on the link attached to listen to her presentation.  I have also attached the slides which provide a lot of food for thought.

By Loretta Matters, Guest Columnist, Durham Herald Sun, May 2013 Every year since 1963, May has been the month to appreciate and celebrate the vitality and aspirations of older adults as well as their contributions and achievements. It is a proud tradition that shows our nation’s commitment to honor the value that elders continue to contribute to our communities. This year’s Older Americans Month theme, “Unleash the Power of Age,” emphasizes the important role of older adults.

The link below contains information on evaluating cognitive functioning:

Methods of Cognitive Assessment

Appropriate Follow Up

Timeframe for Re-evaluation

 

Diagnostic Algorithm

The US Preventive Services Task Force is an authoritative group that issues evidence-based recommendations for clinical care.

They have recently updated their statement on Screening for Dementia and Cognitive Impairment.

Their recommendation remains that there is insufficient evidence to recommend for or against screening.

The guidance statement is the result of a very careful evidence summary and public comment period.

It also includes a very well done patient education brochure.

Both are included in the links below.

I have recently been appointed to a National Advisory Group on development of a Uniform Curriculum on Alzheimer's Disease.

Part of the work involves reviewing an existing set of materials developed by a group in Minnesota called "Act on Alzheimer's"

Note that all of the materials can be used by anyone for free - -you just can't sell them!

Please consider reviewing some of these materials, and giving me your feedback on how you might use them in your own work.

What other content would you like to see developed?

One of the mainstays of care for people with dementia is making certain that their caregivers (both formal and informal) understand the basics of the disease, and how the disease influences behavior.

There are dozens of training programs available for purchase and for free.  It's worthwhile building a resource bank of educational materials you find helpful.

 

My current top 3 favorite sites include:

The link below describes the connection between genetics and dementia.

 

http://www.sciencedirect.com/science/article/pii/S0140673613606303

 

 

En route to finding a video that would showcase, in a realistic manner, the challenges of advanced dementia, I came across this very compelling video and story.